Finally a Doctor that knows what he’s doing!!!

I continue to be overwhelmed by all of the love and support being expressed to myself and more so to my family. Thank you so much!!! And before I get into today’s ramblings I must say a very special thank you to those lovely people in PDV TWR A – not many people get to work surrounded by ‘good people’, I’m just one of the lucky ones.

So we are back home, only to find out that our two boys have now grown up, graduated, went off to college, came home with worldly knowledge and have taken over our house! Who are these kids??? Thank you, in an enormous way, to GR – who not only opened up her home, but opened up her heart to our two wee ones.

So what happens now…

Well to continue the summation, let me start by saying it is nowhere close to over. The last thing I did before leaving Mayo was another skin biopsy. There was an inconclusive result from the last one I did and the team there agreed that it should be done over to get either a clear negative or the diagnosis. They are checking for fatty acid oxidation disorders. If you just raised one eyebrow (a la The Rock) and mouthed ‘say what???’ click here.  I also confirmed that the slides from my last biopsies in Ottawa were sent to Mayo for examination. My x rays were all clear so no arthritis in my hips or back, and the shoot electricity through Mikey’s legs and back test came back saying that there are no dystrophies. So all roads continue to point to one or two enzymes going wonky and causing chaos.

I went to my family doctor and while we wait for the official report to come from Rochester, we will start me on the road of physiotherapy in hopes of getting these muscles to restart. Good muscle mixed with bad muscle means when you ask good muscle to do things that bad muscle can no longer do there is a resulting pain… a big ‘ol pain in the Assivero! I will continue to do my aqua therapy classes as well and hope the combination brings back some range of motion and decreased pain.

As for a final report or assessment – that comes in 4-6 weeks. They will finish consulting with the neurology department once the biopsy report comes in. In the meantime, if I have another episode I have to ship the blood and funky urine over there, but I think I mentioned that before.

The stretching exercises have helped with mobility and make the day a little easier to get through. The kids continue to be very understanding, and I even have a new doctor taking care of me at home. This guy may be young, but he seems to know everything that makes me feel better. So I am glad I found him.

So for now I think I am ok. I follow up with the eye doctor on Friday and the cancer geneticist as well.

If you have a spare Saturday/Sunday and want to sign up for walking partner duty, please let me know. If you haven’t walked outside for some time now, you should be ok, I walk real slow :o)

Once I transfer the pictures from my phone, I will let you see some more of the clinic, and some of St Paul and Minneapolis as well. They are pretty serious about St Patty’s day over there. K has also requested that I tell you the tale of my hunt for Lucy. She is soooooooo sweet. I miss her a lot already, and will never abandon her nor direct my love to another… simply put Lucy is the best!