I love Lucy and she's so Jucy (sp)

Lucy and Tom

Just wanted to say a quick hello and let you know all is well. I’ve had a rough couple of days, but determination will not allow for mushy headspace. The hunt for physiotherapy continues… imagine at the Riverside, the waiting period for people like me who aren’t emergency cases (fresh out of O.R. or a trauma case) have to wait 1 ½ years. Yes you read correctly one and a half years. So looks like I will be heading to the Orleans centre until such time that I can switch to the hospital.

As for my home stretching… Well that doctor that you met in my last post has been keeping me on my toes. In fact he told me that my exercises are too easy and that I have to “do it like this!” and breaks out into a routine that can only be trumped by a VHS recall of the 20 minute workout. Ahhhhh love ‘em.

Well, today’s actual entry is of a lighter nature. My big brother asked that I tell the whole story, but the “ending” … it is up to K whether she tells you or not – just make sure you aren’t drinking sprite. So Lucy, sweet sweet Lucy….

Finally a Doctor that knows what he’s doing!!!

I continue to be overwhelmed by all of the love and support being expressed to myself and more so to my family. Thank you so much!!! And before I get into today’s ramblings I must say a very special thank you to those lovely people in PDV TWR A – not many people get to work surrounded by ‘good people’, I’m just one of the lucky ones.

So we are back home, only to find out that our two boys have now grown up, graduated, went off to college, came home with worldly knowledge and have taken over our house! Who are these kids??? Thank you, in an enormous way, to GR – who not only opened up her home, but opened up her heart to our two wee ones.

So what happens now…

Phase 1 - Check!

The full wrap up is coming, but we are done, and heading out of Rochester on the way home. What I thought would be the end of a journey really has just been the start of another. The short version is that they were able to pinpoint, with far greater accuracy, what is going on with me, simply because they have seen it before. Seems I'm lacking an enzyme or two and its causing chaos in my system. They will continue testing after I leave and consult with doctors back home to continue to narrow the search. They may never find it... and indeed I will suffer with this for the rest of my life.

The good news is that there may be something that can be done about the pain. I will be arranging for physiotherapy on my return and playing the hokey pokey with rhabdo to see how far we can push my body without setting off another episode. Sounds fun huh?!?!? The trick here is to differentiate the pain from muscle fatigue, stretch muscle while strengthening, without doing further damage... still sounds fun, doesn't it?!?!?

The story is much more detailed, but time and high speed are intermittent right now, and I know through BBM threats that it was in my best interest to put something quick to let everyone know that I'm ok. It's going to be hard... there's a lot more tests to be had, pain to be endured, and mental mountains to climb... but I think I am ready. Once I get some sleep of course.

Thank you all for the support... you should get some rest as well, cause I'm gonna be leaning on you once phase two starts...

see you soon.

Mikey.

whooooo ha

This is a very short one ladies and gentlemen. Today is the day the head doc lays out the plan for whats to come. As much as they have 'assured' me that I will leave here with a full answer and clear direction, I am going in today with a certain level of caution. After coming this far, fighting for 8 years, and the complete chaos that my family has had to endure, I just want to end this phase and move on to the next.

So if you read this before 5pm eastern time (4pm central), please say a prayer, send a positive vibe, good karma, etc... please do. There's a great possibility that this is the day I have been waiting for the last 8 years. If not, well we reload and keep searching until we find the answer. At the least it's a sunny day... that's a start.

I have another post for later about happenstance, but I wanted to wait for the full story before telling the tale.

Have and be a great day!

Trigyptabbi...

Did you hear the one about the Trini, the Egyptian, and the Rabbi?

Sooooooo, we come all the way to MN, and now both Ms K and I are fully battling colds. I, of course, with my superman immune system, I’m not affected half as bad as ms “knocked out and can’t talk”. So the weekend couldn’t have been timed better. Ahhhh sweet sweeeet sleep. Of which I don’t seem to be able to get anymore. Back to worrying. Monday and Tuesday as it stands right now are the wrap up and tell days. What on earth is going to be the outcome? I know what they promised, but then again I have had doctors make some bold statements before and not follow through. I know I have mentioned numerous times that I believe in these doctors, in the system, in their ability to diagnose. But even superman can be scared right? (Another if you know me personally moment: IYKMP – ask me about how super a man I am whenever you see me in person… if you are lucky, I may just be able to show you!)

So how does this all tie together… hold your horses, I will get to it. Remember… me… tangents… loving to talk and ramble…

Did I ever mention that I taught elementary classes at an orthodox Jewish School?

How are you???

Good day sir/miss, how are you?

How many times have we walked into a store and heard those very words uttered in a manner that resembles the care we put into throwing a glass bottle into the metal recycling bin? They ask as a matter of fact and so too we answer in a matter of fact manner… does it really make a difference? I mean, when they ask do they really want to know how our day actually is, and when we answer do we always tell the truth? Truth be told I am no different than anyone else who has ever asked that question, sometimes I want the truth sometimes I don’t.

The Sandwich part 2

The Sandwich part 2

Well there’s a title for ya… especially since there was no sandwich part 1. Who cares, I was just trying to sneak in a reference to lettuce, tomatoes, and Mayo. Yes ladies and gents I am here and I can finally start to update you as to what’s going on down here in lovely Rochester, MN (that’s right, NY is not the only place that has a Rochester, Minnesota has its own).

Olive Green, fresh and clean.

Olive Green, fresh and clean.

In 2006 when I went to the world cup I blogged to let family and friends enjoy the journey because many of them could never have made it even if they tried. I’m thinking that the sentiment is similar, but very different now in that I hope none of you want to experience Rhabdomyolysis on your own, but you read because you want to get a sense of the experience that I am going through… or simply you think I’m hot and want to see me in spandex. LOLOL I had to do that just to make one friend truly miserable for a day.

Don’t you, forget about me…

Don’t you, forget about me…

I must apologize, it has been a long time and many people have contacted me saying… well yelling “WHAT ON EARTH IS GOING ON???” There is no easy answer to that question, and truth be told, the answer is not a short one neither. I am currently having my sandwich with a spoon or two full of Mayo, but honestly that will come in the following message. For now I say to you, yet another doctor (or doctor’s office) has slipped up. My lovely brother introduced me to a wider variety of music and movies than my parents did, and for this I will be grateful for a few more years… but seriously, does every doctor’s office staff people with simple minds?

The glass is half full of chamomile tea…

The glass is half full of chamomile tea…

Sorry for the delay in writing, but much is going on at a feverous pace, so I am starting this entry at 1:54 am. I have no normal clock left in me, I sleep when I can and for some reason that’s not very often any more. I think when the stress is finally released from this trip to Minnesota I will sleep for three days straight, or I will find out I have insomnia (hmmm that would be a half empty glass). "Half full!" I say in a wicked English accent!!!

What is this guy mumbling about… glass... full... tea...