The full wrap up is coming, but we are done, and heading out of Rochester on the way home. What I thought would be the end of a journey really has just been the start of another. The short version is that they were able to pinpoint, with far greater accuracy, what is going on with me, simply because they have seen it before. Seems I'm lacking an enzyme or two and its causing chaos in my system. They will continue testing after I leave and consult with doctors back home to continue to narrow the search. They may never find it... and indeed I will suffer with this for the rest of my life.
The good news is that there may be something that can be done about the pain. I will be arranging for physiotherapy on my return and playing the hokey pokey with rhabdo to see how far we can push my body without setting off another episode. Sounds fun huh?!?!? The trick here is to differentiate the pain from muscle fatigue, stretch muscle while strengthening, without doing further damage... still sounds fun, doesn't it?!?!?
The story is much more detailed, but time and high speed are intermittent right now, and I know through BBM threats that it was in my best interest to put something quick to let everyone know that I'm ok. It's going to be hard... there's a lot more tests to be had, pain to be endured, and mental mountains to climb... but I think I am ready. Once I get some sleep of course.
Thank you all for the support... you should get some rest as well, cause I'm gonna be leaning on you once phase two starts...
see you soon.
Mikey.
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3 comments:
You have many to lean on... some may surprise you, but we are all here.
surprise me.. no don't... who are you mr/ms anonymous???
:)
That's Ms Anonymous.
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